Tuesday, October 25, 2011

Autism?

 I know a lot of people are interested in how Joshua is doing, especially others who may be interested in older child adoption.  Overall, he is doing wonderful.  His adjustment has been unbelievably easy.  After our experience adopting Christina from Russia at age 12 years we were prepared to deal with a lot of difficult issues, but thankfully that hasn't been the case.  Joshua is really a great kid!

Joshua is a very obedient child.  He never gives us any trouble.  He does what we tell him to without complaint.  He always has a great attitude and almost always has a smile on his face.  He plays well with our younger kids.  He is especially kind towards Malachi (our gentlest and smallest child, even though Micaelyn is the youngest).  He is often found helping Malachi play some game or riding him around the yard on the bicycle.  He has eagerly played the sports we've put him in even though he had gotten no athletic experiences in China due to his congenital heart defects.  He loved basketball and did great in baseball (both sports were played through our church).  He even started playing football this spring, although we decided not to have him play this fall because he is much more interested in taking karate (which he and all the kids will be starting within the next couple of weeks).

Joshua has been such a great kid, and we couldn't be more pleased with how well he has handled all the many adjustments he's had to make to an entirely new life with a new family, culture, language, food, school, etc.  Unfortunately, we have started to realize he may have some issues to deal with beyond the normal adoption issues.  We have come to realize that what we at first believed was shyness/language barrier/adjustment issues is more serious.

For starters, Joshua obviously has problems making eye contact with other people.  It's nearly impossible to get him to look us in the eye.  His paperwork from China stated he would not make eye contact with people, so this is obviously not something new.

Furthermore, he obviously has communication issues, i.e. he doesn't talk.  At first we attributed this to the language barrier and his unfamiliarity with us perhaps exacerbated by a naturally quiet/shy personality.  However, at this point he really should be able to carry on a conversation with us, and yet he can go days at a time without saying much of anything to us.  It is truly painful to try to talk to him.  No matter how simple you try to make the conversation, how easy the questions you ask, you are lucky to get a few words from him.  He has been with us for 13 months now, and he had had several years of English in school before he came to us.  After having had several years of English instruction in school and being in a complete English immersion environment for over a year he really should be able to carry on a pretty good conversation, even if the English was a bit broken.  It's very obvious he understands most everything being said because when we watch movies he laughs at jokes that require a pretty good understanding of English.  He has even on occasion typed into the computer (in English) the words he wanted to say instead of trying to speak them, even simple 1 syllable words.  We have also had people speak to him in Chinese and they have said the same - he obviously understands what they are saying but won't speak back.  His paperwork from China says much the same - he doesn't talk much, prefers to answer questions with as few words as possible, very quiet, etc.  Obviously, even though the language difference hasn't helped, Joshua's communication issues existed before his adoption and go far beyond the normal language barrier/adoption adjustment issues.

Another thing we've noticed with Joshua is that he does not like to be touched.  He has gotten to the point he will allow the younger kids to lean on him somewhat if they are sitting in the recliner together playing their little Nintendo DS, but in general he does not want to be touched.  The hardest part about this is it means I cannot show him any physical affection as even a very quick hug would be too much for him.

There are other little oddities too.  For example, the way he always sets his stopwatch when brushing his teeth or his focus on certain things, e.g. video games (we were warned before we got him that his interest in video games went way beyond that of the normal kid his age, which was a bit difficult for us to accept since we had previously had a video game free home) or his interest in money (e.g. he wants to know the cost of everything, what people make, etc. - this may seem like a normal interest, but it goes a bit beyond the normal interest).  Although he goes along with whatever we ask of him without complaint, with respect to his own habits he is very structured, very disciplined, very ordered.  Of course, this is actually a benefit in many ways (e.g. school work, mowing the yard - he has his schedule and follows it so well there is never a need to tell him to do his work) so we don't mind it, but when taking into consideration his other issues (e.g. lack of eye contact, lack of speech) one can't help but think of autism.  Of course, it would be a higher functioning form of autism, but he definitely seems to fall somewhere on the spectrum.  We are hoping he has been here long enough now for the professionals to accept that his issues are due to something other than just the language barrier.  We can't help but be really concerned about his future because of his inability to carry on even the most basic of conversations.  Based on what we see in him now it would be very difficult for him to make it to college (he could never handle the interview) much less succeed in the career world, and without the ability to communicate dating and eventually marriage is also extremely unlikely.

So hopefully soon we will have a team of professionals with a plan of action in place to help Joshua overcome his issues.  However, we will continue to focus on the positives, and with Joshua there certainly are plenty of positives!  Although it's hard to not be able to have a conversation with him or give him a hug, he is a great kid who we dearly love.  I often find myself thinking about how hard we had to fight our adoption agency to adopt him (because they don't allow families to adopt 2 children at one time).  I can't believe an agency committed to finding "a family for every child" made it so hard for us to be this child's family considering without us he would have aged out without ever being adopted.  As awful as it would have been for him to spend the rest of his life without the love of a family, with his issues it also would have been extremely difficult for him to have ever succeeded on his own in China.  We are ever so thankful for all those who prayed for us to be able to adopt him and ever so grateful to God, the Mover of mountains and Maker of miracles, for bringing him into our lives.
It is almost impossible to get a good picture of Joshua.  He absolutely will not look at the camera.  We were able to get a few family pictures with him looking decent this past weekend in Gatlinburg (as seen in a recent post) only because we bribed him with money.

Pushing Malachi on a swing.  He is always very good with the younger kids and especially helpful to Malachi.

First Prayer!

It may seem like a small thing, but last night for the first time ever Joshua said a prayer!  Praise the Lord!  It was just me with all 5 of the kids and Christina's boyfriend for dinner.  As always, the youngest 3 fought over who would say the prayer, so I let them each say a prayer.  Then I had Christina and Aaron (her boyfriend) each say a prayer also.  Then I asked Joshua to say one, and much to my great delight he agreed!!!!!  He bowed his hand and said, "Thank you for this food.  Amen."  It was short, but it was ever so sweet!  Many people who have adopted older kids understand the joy in hearing their first prayer, but for Joshua this is an especially amazing leap of progress because he almost never speaks!  Needless to say, we all cheered big for that short and oh so sweet prayer!

Monday, October 24, 2011

First Date

There are many challenges in adopting an older child, but one of the hardest to deal with emotionally is the loss of so much of your own child's life.  The first months and years are fraught with all sorts of difficulties as the child adjusts to an entirely new life in a new home with a new family, new culture, new language, new rules, etc.  However, no matter how hard those difficulties, things tend to get better over time.  Parents get better at helping their child, and as the child gets accustomed to her new life she gets better at dealing with the issues from her past.  However, one thing that never gets better is the loss of all that you missed out on in your child's life.

There is so much we missed out on with Christina.  We missed her first smiles, her first steps, her first words.  We missed the loss of her first tooth - in fact, by the time we got her she had already lost ALL her baby teeth so we never got to share in her excitement over the tooth fairy's visit.  We missed her first birthday and all the ones up until the teenage years.  We missed out on being able to comfort and hold her during sickness from the months she battled tuberculosis as a toddler to the simple colds she faced while growing up.  We weren't able to stand up for her when others at school were mean and made fun of her for being an orphan or for being Vietnamese, and we weren't there to protect her when the bigger kids at the orphanage stole away her food or beat her up.  From the happy moments to the sad moments, we missed all of her childhood.  We have not one picture of her as a baby, as a toddler, as a preschooler, as a small child.  In fact, other than the 1 referral picture we have of her at age 11, the only pictures we have of her from before we adopted her are pictures of her at almost 12 years old from families who traveled before us to adopt her friends.

When you miss so much of a child's life you can't waste time dwelling on what you missed - you must move forward and delight in all the new experiences with your child.  After all, regardless of how many years you missed you can look forward to a lifetime together.  We have enjoyed watching each of our adopted kids delight in the new world around them.  From her first time at McDonald's to her first time at the ocean there have been many "firsts" with Christina.  Most recently we got to delight in her first date!

We are ever so proud of Christina for waiting until the right guy came along instead of settling for second best just to have a boyfriend.  We truly love this guy and couldn't be happier that Christina is with such a wonderful young man.  He comes from a great family, and he has a strong faith in Christ with a great set of morals.  Our younger children adore him, and we love having him here with our family!
These 2 pictures are some I took just before they left our home.  Doesn't Christina look beautiful (and happy!) for it to be 7:00am and for her to have no make-up on?

This was actually back in August, so that first date obviously went quite well.  :)  I think they look so cute together!

Her first date also happened to to be her first time hiking to the top of a mountain (Mt. LeConte in the Smoky Mountains).



Sunday, October 23, 2011

Surgery cancelled

Recently we had an appointment with Micaelyn's doctor who will be doing her surgery next month.  Caleb had been somewhat sick (again) for several days before the appointment, and that morning he woke up screaming in pain about his ear.  So we headed off to his doctor first thing to confirm he had an ear infection and get some prescriptions for him.  Then while we were at Micaelyn's doctor I brought up Caleb's issues to him.  He was so kind as to take the time to get a full history on Caleb, do an exam, and get all the paperwork done to have him enrolled there as a patient.  He did feel Caleb might benefit by having his tonsils and adenoids removed, so although we went there just for Micaelyn we walked out with surgery scheduled for both Micaelyn and Caleb.

Caleb did NOT like the idea of having surgery.  Of course, it probably didn't help any that we had spent the last month talking a lot about Micaelyn's upcoming surgery and how difficult it would be, how many days she'll be on the breathing tube, how long she'll be in ICU, etc.  So when we were there for Micaelyn and suddenly started talking about surgery for him it was no wonder he took it so hard.  Needless to say it took a lot of effort to get him prepared for the surgery.  He was very scared, and it was a difficult morning emotionally for him.  Unfortunately, after all the nervous tension he had built up the surgery ended up having to be rescheduled.  We showed up at the hospital, waited until we were called, went back and got him dressed in the gown, signed all the papers, etc., all while trying to help calm his nerves.  However, there was a lot of concern about his medical history and the fact he had been recently sick and still had a bit of congestion.  The anesthesiologist was called in and after listening to him she felt it was too risky to proceed with the surgery, especially with his history of respiratory problems.  We ended up having to reschedule, and they want him to have breathing treatments for several days before the surgery when it's time to come back.
This was AFTER the surgery had been canceled and we had gotten him dressed and ready to go home.  He had been so upset about the surgery that even once it was canceled he wouldn't smile (probably because he knows he just has to go back again later).  He is holding his Reagan (the elephant on the right) he's had since he was a baby (his most favorite lovey) and his Ronald (the elephant on the left) which my mom had made him the day before as a special gift to hold along with Reagan during the surgery.  The afghan is one I crocheted for him while I was pregnant with him.  My mom and I wanted to make sure he was surrounded by love during the surgery!

Once again you can see the discoloration under his eyes from sickness.  Even the people at the hospital who don't see him everyday felt he looked sick.  Poor boy!

Grandma's Love

If anything can possibly compare to a mommy's love, it's a grandma's love!
My mom with our 3 youngest (I took this just before she took off for the 2 hour drive back to her home.  Christina was at school, and Joshua doesn't like getting his picture made).
 

Caleb did not want her to go back home!  It's so wonderful to see the love between my mom and my children.  What a blessing she is to our family!

Beautiful Day in Gatlinburg