Wednesday, May 6, 2015

Beckwith Weidemann Syndrome

I know many people stumble upon my blog while searching for information on Beckwith Weidemann Syndrome.  Because it's a more rare syndrome it can be harder to find information about it, particularly from a personal experience point-of-view.  Here are my 2 girls with BWS.  They are both beautiful, but they are even more amazing on the inside!  They have endured more than most kids medically, but they are just as happy and loving as can be!  And they both love dressing up as princesses!  (And just in case you're wondering, they are NOT biologically related!  Micaelyn was adopted from China, and Elianna was adopted from here in the United States.)









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