New pictures of Micaelyn

After asking numerous times over the last year for current pictures I finally have some! We received the last pictures of Micaelyn from the orphanage back in February, but they were actually taken last September, nearly a year ago. Needless to say I'm not only happy to have gotten more pictures, I'm also happy the pictures were actually current this time. We were so very happy to see her smiling in these pictures!

I just love the last picture of her with her mouth closed. Due to her enlarged tongue her mouth has been open in almost all the pictures we have received of her. It's nice to get a glimpse of how cute and spunky she looks when she holds her lips together.  Needless to say, I cropped it to show off her sweet little face!

Also on a positive note, the geneticist has agreed to work Micaelyn in soon after we get her home even though it normally takes several months to get an appointment. Due to the fact she should be receiving blood work every 6 weeks and ultrasounds every 12 weeks to screen for tumors it is of utmost importance she be seen right away. She hasn't been receiving any screening in China, so we have had to rely solely on faith that her little body is staying healthy and tumor free. It was also wonderful to hear the geneticist has had experience with Beckwith-Wiedemann syndrome patients. Given it's a rather rare syndrome many families deal with doctors who have no experience with BWS. We feel fortunate to have access to such good medical care for Micaelyn.